Experiencing vision loss can feel overwhelming and filled with uncertainty. Common fears arise, such as losing independence, and not being able to work or care for family members. The emotional toll is often coupled with a lack of awareness about available support systems and resources. 

Fortunately, a range of professionals in the field of vision rehabilitation can help you navigate these challenges. In a Hadley Presents podcast episode, host Ricky Enger is joined by Steve Kelley and Eric Boklage, experts with personal experiences of vision loss, who share their insights into the vital services that can help you on your vision loss and rehabilitation journey.*

Personal Journeys with Vision Loss

After being told that nothing more could be done for his vision, Steve feared for his job and financial stability. Fortunately, his introduction to vocational rehabilitation, particularly assistive technology, helped him regain his confidence. 

His experience eventually inspired him to work in that field, providing others with the support he once needed.

Eric’s vision loss began in his mid-forties, after multiple retinal detachments and surgeries. Following each procedure his doctors reassured him, but he continued struggling with everyday challenges. 

He finally found a new sense of purpose in vision rehabilitation, and is currently studying to become a certified vision rehab therapist, equipping himself with the tools to help others on similar journeys.

Key Vision Professionals and Their Roles

A wide range of specialists are available to help you adapt to low vision and continue living safely and independently. Here are just a few.

• Vision rehabilitation therapists (CVRTs). CVRTs can help you adapt to your remaining vision by teaching skills to navigate daily life. They assist with tasks like identifying clothing, safely preparing meals, and modifying home environments to enhance independence.
• Orientation and mobility specialists (COMS). COMS focus on safe navigation, whether within the home or outside. They’ll teach you how to use canes, guide dogs, or even digital tools like smartphone apps to navigate public transportation. Their work is crucial for restoring a sense of independence in movement.
• Certified assistive technology instructional specialists (CATIS). In response to rapid technological advancements, assistive technology specialists focus on helping you use devices like smartphones, computers, and screen readers to stay connected and productive. This role has become essential as technology now plays a key role in maintaining independence for those with vision loss.

Accessing Resources and Support

Great, you may say, but how do I find and engage these specialists? There are several ways.

• Navigating state and local resources. Most professionals are accessible through state vocational rehabilitation agencies. For those unsure where to begin, calling organizations like Hadley Vision Resources or the APH Connect Center can help direct you to appropriate services. Nonprofit organizations often offer low-cost or free support.
• Community support and continued learning. Engaging in discussion groups with others facing vision loss can ease feelings of isolation and grief. Community workshops on topics like gardening or technology offer a sense of shared experience and practical knowledge.

Takeaways

Steve emphasizes that no one facing vision loss is truly alone. A range of professionals and organizations provide various avenues to receive support, education, and encouragement. For people like Eric, vision rehabilitation isn’t just about receiving help—it’s about finding new purpose and helping others along the same journey.

*Hadley. (n.d.). Services You Should Know When New to Vision Loss [Podcast]. Retrieved from https://hadleyhelps.org/podcasts/hadley-presents-conversation-experts/services-you-should-know-when-new-vision-loss

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