Normal-tension glaucoma snuck up on Ginny Wright, preventing her receiving a diagnosis until she had 70% loss of vision in one eye. Her story highlights the silent and progressive nature of glaucoma, the challenges of managing it, and the hope for advancements in treatment. In sharing her journey, she sheds light on the impact of the disease and her strategies for coping and thriving despite its limitations.*

A Surprising Diagnosis: Coming to Terms with Glaucoma

Ginny recalls her shock upon being diagnosed with normal-tension glaucoma, describing it as a “silent disease” that crept up unnoticed. “I was surprised—I was in disbelief. What? Me? I have glaucoma?” she shares. Initially, the loss of peripheral vision went unnoticed due to its gradual nature. It was only during a routine checkup that the severity of her vision loss was revealed.

She explored various treatment options, consulting five specialists before deciding on a trabeculectomy with Dr. Sahar Bedrood of Advanced Vision Care in Los Angeles, CA. This surgery, which reduces intraocular pressure by creating a drainage channel, was pivotal in preserving her remaining vision. Reflecting on the journey, Ginny emphasizes the importance of thorough research and making informed treatment decisions.

Adjusting to Life with Glaucoma

Ginny has made significant lifestyle changes to adapt to her vision loss. Simple tasks like crossing the street or driving require extra vigilance. “You don’t just look once; you look twice and turn your head fully,” she explains. She also takes precautions to protect her “good eye,” such as wearing protective glasses while cooking or cleaning. These are just a few of the everyday adjustments glaucoma patients must navigate, she says.

Social interactions can be challenging as well. “Sometimes at parties, I’ll knock over someone’s drink without realizing it,” Ginny admits. Despite these difficulties, she maintains a positive outlook, expressing gratitude for the vision she still has.

Community and Hope for the Future

Ginny’s support system—comprised of her husband, children, and medical team—has been instrumental in her journey. She also finds solace in learning about glaucoma through reading, and connecting with others at patient events. Meeting fellow patients has given her perspective and reinforced her determination to raise awareness about the disease and support research.

“As a patient, my hope for the future is to find a cure for glaucoma,” she says. Until then, she awaits news of advancements and treatments that can stabilize vision loss and ensure a healthy optic nerve. “Knowing it won’t get any worse,” she says, “would bring such a sense of relief.”

*Glaucoma Research Foundation Videos. (2024, June 18). Ginny Wright Personal Story: Normal-Tension Glaucoma Patient [Video file]. https://www.youtube.com/watch?v=Z10x4BRkl1o&t=12s 

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