Living with glaucoma and experiencing vision loss can be incredibly challenging. Whether these changes occur gradually or suddenly, it’s natural to feel a range of emotions, including fear, denial, acceptance, and even hope. These feelings are a normal part of the adaptation process and do not indicate weakness.

In their 2004 book, “Self-Esteem and Adjusting to Blindness: The process of Responding to Life’s Demands”, experts Dean and Naomi Tuttle outlined seven stages that many individuals go through when adjusting to vision loss. These stages closely resemble the five Kubler-Ross stages of grief, often described in relation to the loss of a loved one.*

Understanding these stages can help you identify where you are in your own journey, remind you that you are not alone, and provide guidance for what comes next.

Stage 1: Trauma—Initial Shock

When vision loss first becomes noticeable, you may feel frightened and overwhelmed. Racing thoughts about how your life might change are common. You may struggle with stress and anxiety, wondering if you’ll lose your independence. In this stage, support from loved ones often matters most; simply having someone listen or help with daily needs can make a difference.

Stage 2: Shock and Denial—“This Can’t Be Happening”

After the initial fear, denial often sets in. You might feel numb, disconnected, or even unwilling to accept what’s happening. It can be tempting to ignore your diagnosis or delay care because facing it feels too painful. Some people even continue risky activities, like driving, despite vision loss. If you’re here, know that it’s okay to need time to process. Gentle honesty and space from loved ones can help you move forward.

Stage 3: Mourning and Withdrawal—Grieving What’s Lost

As reality sets in, sadness can deepen. You might withdraw from activities you once enjoyed, especially if vision loss makes them difficult or impossible. Feelings of helplessness, frustration, or even anger may surface. Isolation is common in this stage. Connecting with others who understand vision loss, through support groups, peers, or trusted communities like this one, can remind you that you’re not alone.

Stage 4: Succumbing and Depression—Feeling Stuck

In this phase, you may feel overwhelmed by hopelessness. Motivation may fade, and it can become harder to care for yourself. Depression, loneliness, and boredom may set in. While this stage can be one of the hardest, it’s also one where support is critical. Speaking with mental health professionals, joining vision loss groups, or simply leaning on friends and family can provide strength and perspective.

Stage 5: Reassessment and Reaffirmation—A Turning Point

This is where the path begins to change. You may find yourself thinking, Life is still worth living. You start to realize that while glaucoma has changed your vision, it hasn’t changed who you are. You may experiment with new ways to do daily activities—though sometimes you might still try to do them “the old way.” The key here is curiosity and openness to adapting.

Stage 6: Coping and Mobilization—Finding New Strategies

As you gain new skills, you build confidence. Whether it’s learning mobility techniques, using assistive technology, or finding new hobbies, you’re developing ways to live fully with glaucoma. You might still feel self-conscious in public, but involving loved ones in new activities can help you feel supported as you adapt.

Stage 7: Self-Acceptance and Self-Esteem—Embracing Life Again

The final stage is not about “getting over” vision loss; it’s about integrating it into your life with confidence. You recognize that vision loss is one part of you, not the whole of you. Relationships can flourish, activities can bring joy, and you can use tools and strategies without shame. While ups and downs will still come, emotional stability and a stronger sense of self make this stage empowering.

Resources and Support

No matter which stage you’re in, support can make the journey easier. Several trusted organizations provide guidance, education, and community for people living with glaucoma and vision loss:

• Prevent Blindness offers educational resources and programs to help you understand glaucoma and protect your vision.
  
• The Glaucoma Foundation provides information, advocacy, and support for ongoing research into better treatments and care.
  
• The Glaucoma Community gives you access to expert-reviewed content, tools, and a welcoming space to connect with others living with glaucoma. If you’re not yet a member, consider joining to share experiences and find encouragement from people who truly understand.

Beyond organizations, know that many tools and technologies are available to support your day-to-day life—from talking prescription labels and screen readers to magnifiers and smartphone apps that read text aloud. Low-vision rehabilitation specialists can also teach you practical strategies for navigating daily activities with more ease and confidence.

Adjusting to vision loss with glaucoma is not a straight line; it’s a series of stages you may move through at different speeds. Wherever you are right now, know that it’s valid, and you’re not alone. With time, support, and the right strategies, self-acceptance and hope are possible.

*Healthline (August 9, 2024). “What Are the 7 Stages of Adjustment to Vision Loss?” https://www.healthline.com/health/7-stages-of-adjustment-to-vision-loss

To ensure that we always provide you with high-quality, reliable information, The Glaucoma Community closely vets all sources. We do not, however, endorse or recommend any specific providers, treatments, or products, and the use of a given source does not imply an endorsement of any provider, treatment, medication, procedure, or device discussed within.